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Keynote: Advocating with Purpose
October 11, 2020 @ 9:00 am - 9:50 am EDT
Hear Kevin Koser, Chair of the National Foundation for Ectodermal Dysplasia’s Family-Driven Advocacy Committee, share his story about how he effectively advocated on behalf of families living with congenital anomalies to introduce the Ensuring Lasting Smiles Act (ELSA)
Learn about the journey of Kevin working to make a difference for his son, Kannon, who has hypohidrotic ectodermal dysplasia (HED) and the grassroots efforts of families all across the nation in support of ELSA.